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WHO WE ARE
Mission Statement
Turner Syndrome India is dedicated towards providing resources and support for patients and families of patients with Turner Syndrome in India. Understanding the lack of support and unpredictability that often accompanies the diagnosis of a rare condition like Turner Syndrome, we hope to lessen the burden of struggling patients through presenting information regarding latest research breakthroughs and clinical guidelines.
So far, we have held 7 different events across India serving thousands of women with Turner Syndrome.
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"Only if we participate collectively, share our experiences, and help each other in the quest to fight any disease, then we will stand a chance to find a solution, treatments, and hope."
NIH on Rare Disease Day
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